23/06/2014

Rare Disease Infographic

Our staff was first captivated over rare diseases when our community director attended a weekend hackathon dedicated to hacking the current rare disease patient experience. Moved by the collaborat...
23/06/2014

Researchers Hesitant to Use Social Media to Show Findings

Researchers remain uncertain about the use of social media to communicate their findings to policy makers, according to research published online June 6 in Health Affairs. FRIDAY, June 13, 2014 (HealthDay News) -- Researchers remain uncertain about the use of social media to communicate their fi...